A fantastic resource for patients and the general population to better understand RLS and find support or providers.
The RLS Foundation in their own words:
The Restless Legs Syndrome Foundation is a nonprofit 501(c)(3) agency that is dedicated to improving the lives of men, women, and children who live with this often-devastating disease. The organization’s goals are to increase awareness, improve treatments, and advance research to find a cure.
The RLS Foundation is the leading organization for science-based education and patient services for people with restless legs syndrome. It is also the only organization with a dedicated research grant program to advance promising research leading to new treatments and a cure for RLS.
Since its inception in 1992, the Foundation has provided over $2 million in support of RLS research, and has grown from a small group of volunteers meeting around a kitchen table in Raleigh, North Carolina into a bustling organization with full time staff and an office in Austin, TX.
RLS was regarded as a “rare” condition when we began, but understanding of the disease has changed drastically. The condition is not rare at all, recent research suggests that up to 7-8 percent of the general population has this neurologic condition. Through education and advocacy efforts it is our goal to expand the understanding of RLS.
To visit the Restless Legs Syndrome Foundation website, please click on their logo.
RLS – Italia hosts a webinar series geared towards patient education and the full series is available on their website.
RLS – Italia on the purpose of the webinar series:
The aim of this webinar series is to disseminate information and updates from the scientific field on sleep movement disorders, ensuring continuous advancement for the benefit of patients. Leading experts in the field will participate, discussing topics where they have excelled in research and which hold significant importance in clinical practice.
To view these webinars – subtitled in both English and Italian – click on the RLS – Italia logo.
RLS eV is an RLS patient organization based out of Germany. Offering online resources as well as local and online support groups.
To visit the RLS eV website, please click on their logo.
The IRLSSG is committed to the principles of open and full scientific communication and collaboration, peer review, full disclosure of potential conflicts of interest, and democratic governance of its organization and activities.
Administrative Office
3270 19th St NW, Suite 110,
Rochester, MN 55901 USA
Phone: +1.507.316.0084